Exploring Health Information Exchange Trends among Diabetes Patients on International and Pakistani Online Platforms

Abstract

Aim of the Study: This study aims to compare internationally recognized online health communities (OHCs) such as PatientsLikeMe, Diabetes Daily, and DailyStrength with potential Pakistani counterparts like Oladoc, Sehat Kahani, ZMedHealth, and Marham. By discerning the strengths and weaknesses of these platforms, the study seeks to guide the development of tailored digital health solutions to address the specific needs of diabetic patients in Pakistan.

Methodology: The study conducted a comparative analysis of OHCs' usage patterns, types of OHCs utilized, duration of membership, perceived benefits, types of support received, and trust in shared information. Data were gathered through semi-structured interviews, meticulously coded, and categorized from the University of Lahore Teaching Hospital, Dental Hospital University of Lahore, Social Security Teaching Hospital, Al Khidmat Teaching Mansoorah Hospital, and Sehat Medical Complex, Lahore to analyze the frequency and percentage distribution of responses across various parameters.

Findings: The frequency of OHC usage varied, with 40% of respondents using OHCs daily and 16% using them frequently. Facebook emerged as the most utilized platform (70%), followed by Instagram (16%). Regarding the duration of OHC membership, 24% had been members for 2-3 years. Benefits of OHC usage included information access (16%) and emotional support (24%). Peer support (24%) and guidance on management strategies (24%) were the most common types of support received. Forty percent of respondents expressed trust in the information shared on OHCs.

Conclusion: The study highlights the widespread use and varied benefits of OHCs among diabetic patients in Pakistan. It underscores the importance of tailoring digital health solutions to local contexts while leveraging international best practices. Understanding the dynamics of OHCs can inform the development of effective interventions to support diabetic patients and enhance their healthcare.